• Happy New Year

    Spent a large part of New Years Eve in the Cancer Centre having round 5 … a cautious approach to the dosage resulted in no adverse reactions today, something the nurses were very happy about.

    All the staff at Canopy Cancer Centre have been absolutely wonderful, however having now exhaused the generousity of Southern Cross its over to the public health system for the next round of treatment at the end of Jan. Really looking forward to having a short treatment break after this round, hopefully get 2-3 weeks of feeling somewhat “normal” and enjoy some time at lakes and beaches around the place.

    Blood results continue to be positive, CEA level has dropped a little more to 3.0.

    Wishing you and all those close to you a Happy New Year and a 2025 filled with joy.

  • Merry Christmas

    Apologies for the lack of updates recently, this Chemo cycle to date has been without issue, a bit of fatigue and very light nausea but all things considered things continue to progress well. Looking forward to spending some time with family over the next few days.

    While 2024 has not perhaps turned out as we would have wanted or hoped there is still plenty to be thankful for as we celebrate Christmas. As we have travelled the journey to date we have been truly humbled by the number of people that have so graciously supported us as a family. It is greatly appreciated, the number of people that have reached out over the last few months and have been praying for us has blown me away, including people that we have never met, thank you all from the bottom of my heart.

    This Christmas it is my prayer that everyone will get space for reflection, refreshment and renewal as we remember the birth of Jesus.

  • Round 4 Day 1- more drama

    Bumpy start … got there in the end. After promising the nurses I would behave myself it wasn’t long before I broke my promise!!!

    Chemo administration was not without complications today … there was a clot at the end of my port, it was on the scan so not a surprise but ended up ending additional drugs to break it down. Not a major but slowed progress.

    Once that was sorted … I had another reaction at the start of the drug infusion … not quite as exciting as last time … think everyone was much more aware this time. I gave them more advanced warning the nurses were on their toes to stop the pump. Came and went quickly again … shame there is no photographic evidence as apparently I turn all sorts of interesting colours.

    The dose rate was slowed and the rest of the session went without issue. Given the good early response to treatment everyone seems very keen to do whatever is possible to continue with the current drug concoction.

  • “As good as could be hoped for”

    Had an Oncologist appointment today following a CT scan last week. “Short of a miraculous healing it’s as good as you could hope for” … it seems prayer and chemo are a very effective combo.

    Comparing scans side by side it is clear that the liver tumours are much reduced in size and their shape shows evidence of healthy tissue regenerating into the tumours.

    CEA markers in the blood also continue to reduce, they were 30 pre treatment, 35 after round 1, 10 after round 2 and now after round 3 are 3.6.

    The current plan is to have another 2 rounds of treatment (18 and 31 Dec) and then miss a cycle to have a break to allow 2-3 weeks to enjoy some of the NZ summer without chemo side-effects. Then get back into treatment in the last week of January.

    Thanks again for all the prayer and support … it is both humbling and very much appreciated.

  • A night in ED

    Spent last night (Thursday) in hospital after developing a fever.

    After a series of tests was discharged early this morning with a course of antibiotics. Appears it is most likely related to the blood clots discovered earlier in the week.

    Had no other symptoms other than the elevated temperature, still feeling well other than suffering the effects of a night with no sleep.